Res. No. 765
Resolution calling upon the New York State Legislature to pass and the Governor to sign Jaden's Law, which would provide for the creation a bone marrow and peripheral blood stem cell donation registry, as well as education and outreach to potential donors
By Council Members King and Chin
Whereas, Blood-forming stem cell transplants are used to restore the stem cells when the bone marrow has been destroyed by disease, chemotherapy, or radiation; and
Whereas, Blood-forming cells can come from bone marrow, peripheral (circulating) blood, and the blood in the umbilical cord and placenta after a baby's birth; and
Whereas, These transplants are potentially life-saving treatments for people with leukemia, lymphoma or a genetic metabolic or immune system disorder; and
Whereas, According to the United States (U.S.) Department of Health and Human Services (HHS), each year more than 20,000 people in the U.S. are diagnosed with life-threatening illnesses where bone marrow or umbilical cord blood transplantation from a donor is their best treatment option; and
Whereas, Only 30 percent of patients will have a relative who matches and is able to participate in a transplant and the other 70 percent must rely on donors; and
Whereas, The Leukemia and Lymphoma Society (LLS) estimated that 156,420 people were diagnosed with leukemia, lymphoma and myeloma in 2014, nearly 10 percent of all cancer diagnoses; and
Whereas, Every ten minutes a person dies of blood cancer, and it is estimated that leukemia, lymphoma and myeloma accounted for over 55,000 deaths in the United States in 2014, according to LLS; and
Whereas, According to HHS, there are more than 24.5 million potential marrow donors and 622,000 cord blood units available worldwide, however, it is more difficult for patients of racially and ethnically diverse backgrounds to find a match; and
Whereas, This was true for Jaden Hilton, as he lost his battle with leukemia at the age of three; and
Whereas, Jaden was unable to find a bone marrow match, none of his family members were suitable matches and there was not an adequate match on the National Marrow Donor Program registry; and
Whereas, Be the Match reports that the likelihood of finding a match is 66 percent for African American or Black patients and 72 percent for Latino or Hispanic patients versus 93 percent for White patients; and
Whereas, To increase the number of minority donors and raise awareness about the importance of bone marrow and peripheral blood stem cell donation, New York State Assembly Member Keith Wright and Senator Diane J. Savino sponsored Jaden's Law (A.4171-B/S.5917); and
Whereas, Jaden's Law would require the Commissioner of the New York State Department of Health (DOH) to prepare a brochure for physicians to share with their patients; and
Whereas, The brochure would inform patients about their option to become a bone marrow or peripheral blood stem cell donor, as well as provide other important information about the procedure and the benefits of donation; and
Whereas, The legislation would also require DOH to establish a Bone Marrow and Peripheral Blood Stem Cell (PBSC) Donation Registry; and
Whereas, The registry would accept registration by potential donors through mail and online applications and the legislation requires the creation of an outreach and marketing plan for the registry; and
Whereas, The bill seeks to make enrolling in the PBSC Donation Registry easy by including this option on both voter registration cards and driver license applications; and
Whereas, A version of Jaden's Law has already been enacted in New Jersey; and
Whereas, These efforts would increase awareness about the need for bone marrow and peripheral blood stem cell donors and encourage countless individuals to register; now, therefore, be it
Resolved, That the Council of the City of New York calls upon the New York State Legislature to pass and the Governor to sign Jaden's Law, which would provide for the creation a bone marrow and peripheral blood stem cell donation registry, as well as education and outreach to potential donors.
CP
LS 5608
6/19/15